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Social Security Death Index database, after two customers complained their privacy was violated when the Social Security Administration falsely listed them as deceased. Unfortunately, these restrictions weren't the end of the changes to public access to the Social Security Death Index. Genealogists and other individuals can no longer request copies of social security applications SS-5 for individuals who have died within the past three years under the Freedom of Information FOI Act.
Recent deaths are also not included in the SSDI until three years after the date of death.
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However, its use does require institutional review board permission since protected health information PHI elements are used to search. However, it takes a formal submission with a two-month response time and has associated costs. A recent study showed the two databases to have comparable accuracy. However, these studies compared databases and did not use direct follow-up as the criterion reference. There were a variety of causes This can be done by name and other demographics. Studies not using the SSN in their searches found poorer sensitivity compared to when it was used, and investigators should beware of searches not using the SSN.
For our syncope cohort, this was a secondary analysis carried out up to two years after the index ED visit. Hence, we were not able to determine how current the online SSDI is, nor verify the governmental claim that it is completed within six months of a death. Several online database ancestry and genealogy websites incorporate the SSDI search engine, so researchers should take care to use only the native search site.
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We did not evaluate the engine at these secondary sites and cannot comment on their accuracy. Although our syncope study recorded accurate SSNs, this may not be the case for other ED-based studies, with a high proportion of undocumented subjects or frequent recording errors in demographic information.
Searching the online SSDI, with a correct SSN provides an accurate method to determine death as an outcome in clinical research studies. A majority of subjects ordinarily lost to follow-up can have their vital status determined.
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Reprints available through open access at www. National Center for Biotechnology Information , U. West J Emerg Med.
Author information Article notes Copyright and License information Disclaimer. Received May 29; Accepted Sep This article has been cited by other articles in PMC.
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Methods We selected 30 patients who were determined to be dead and 90 patients thought to be alive after an ED visit as determined by a web-based searched of the SSDI. A review by the Government Accountability Office in found that the Social Security Administration and other federal benefit-paying agencies that use data from the Death Master File are potentially vulnerable to making improper payments due to errors or processes that could lead to errors. From Wikipedia, the free encyclopedia.follow url
Using the Social Security Death Index - Young Marr Law Firm
United States portal Politics portal. Retrieved National Technical Information Service. Retrieved 25 January Archived from the original on Clamps Down on Death Record Access".
NY Times. Baltimore: ABC2.